When Franny was born we were thrilled about our first baby. At about 2 weeks of age, Franny started having seizures. She was hospitalized with viral encephalitis. We spent 5 days in the hospital while they did multiple tests, EEG’s, and more to find out what was going on and try to stop it. At four and a half months, Franny started physical therapy and occupational therapy because she was showing early signs of gross and fine motor delays. At one year Franny was diagnosed with Hemiplegia Cerebral Palsy. That diagnosis was changed a few years later to Triplegia CP. Franny was also diagnosed with status epilepticus. Franny is now a wonderful 10 year old girl with tremendous potential. Throughout the last ten years, Franny has had countless hours of PT, OT, multi-week intensive therapies. In addition to regular therapy, she has tried the Suit Therapy at Euro-Peds, hydrotherapy, hippotherapy, acupuncture, craniosacral message and more. We have tried and accessed as many, if not all, treatments available in the US to give Franny the quality of life she deserves. The majority of these therapies are not covered under insurance. Through the generosity of family, friends, and fundraisers we have held, we have been able to provide these opportunities to Franny. We have recently found out about centers around the world that treat CP with a patients own stem cells. The success of this treatment has been remarkable for the people that have made it to one of these centers. It is our goal now to get Franny to the Xcell Center in Germany for stem cell treatment. Through this website we hope to raise money to get Franny the treatment she needs, raise awareness for stem cell therapy for people with CP and other conditions, and raise awareness to the fact the the US is far behind the rest of the world in stem cell research, treatments for children with CP and other similar conditions. This therapy should be available here in the states now and we hope that by raising awareness to the success of this type of stem cell treatment, we may be able to get it here sooner and help other children and adults living with CP. Please read more through the site for info on these therapies and some inspirational stories about other kids that have traveled to the xcell center.
Design by Simon Fletcher. Powered by Tumblr.
© Copyright 2010